As do all pregnant mothers, Heather Lanier expected the
perfect baby. But Fiona Soen Ray was born with the rare Wolf-Hirschhorn
syndrome. In this memoir Lanier shares the raw emotional turmoil and sheer
exhaustion she has experienced raising this “rare girl.”
This is a beautifully written, honest memoir, and after
reading it you will never again think of another person as “disabled,” “handicapped”
or even “mentally challenged.” Lanier takes you along on a journey through the
years to discover who Fiona really is.
Although her husband, Justin, is an Episcopal priest, Lanier
finds it inconceivable to imagine one man could redeem us from sin. But she
certainly exhibits all the qualities of a Christ-like mother with her sacrificial
love, dedication and faithfulness to the task of raising Fiona.
I highly recommend this book because it shows the anguish
that any mother would experience as she tirelessly cares for a child she loves
yet sometimes finds some caregivers dismissive and even critical of her concerns.